09-30-2008, 11:48 PM
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#71 |
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AKA Capten
Join Date: Aug 2006
Location: Bay Bridge Marina
Posts: 949
Credits: 1,634.7
Boat: 1983 46' Hatteras HP
Home Port: Annapolis, MD & Sunset Marina
Occupation: I sell stuff
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Fall 2008 Update
http://www.caringbridge.org/visit/evanlindberg
TUESDAY, SEPTEMBER 30, 2008 09:56 PM, CDT Since I last wrote, Evan received another round of Rituximab along with cytoxin. His blood counts dipped, but overall he made it through quite well. It looked as though his HAMA was in the negative range which gave us hope that he could start the antibody therapy in NY again (and get a break from chemo). But 2 weeks later, he tested very close to HAMA positive. That means he cannot start antibody therapy again yet. Why it went up, nobody knows. So, yesterday he started his 14th round of post-relapse chemo. The results of his scans from 2 weeks ago are great. NED, no evidence of disease. That is ALWAYS welcome news. Along with the MIBG bone scan, bone marrow biopsies, CT scan, MRI, and urine levels test, he also underwent a hearing test. He has mild to moderate hearing loss due to one of the chemo agents he has received. The audiologist said that he doesn't need hearing aides at this point, but we need to let his school know. He has started kindergarten and is doing well. He gets homework (just like the high schoolers) which makes him feel like a big guy! He has recess just before I pick him up after school and as soon as we get out of the building, he runs toward the playground and squeezes in all the activity he can before we have to get going. We love his energy and we are thankful for it. His HAMA level will be tested in a couple of weeks again. The doctors do not expect the benefits of the Rituximab to be evident for about 6 months. So in the meantime, he will continue with chemo. My mother has entered Hospice care. Her struggle with ovarian cancer has been long, painful and challenging. Her strength and persistence has been absolutely inspiring. Please say a prayer for her. Thank you for sending us such positive and caring thoughts. With hope, Wendy |
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10-01-2008, 12:51 AM
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#72 |
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I think Admin is going to let me have this space
Join Date: Apr 2006
Location: Wrightsville Beach, NC
Posts: 3,371
Credits: 8,872.4
Boat: 2 many
Home Port: Bridge Tender Marina & Motts Channel Seafood
Best Catch: My family
Occupation: Charter Capt.
Blog Entries: 8
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This thread makes me thankfull for what time I have on this earth. I could only hope that I may be as brave as he if I have this to indure...
 I shed a tear each time I read about him...Thanks for keeping us informed about how he is doing...
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Gottafly Guide Service Capt. Lee Parsons 910-540-2464 Booking for Speckle Trout or False Albacore out of Harkers Island Now offering MirrOlure Schools We could learn a lot from crayons: some are sharp, some are pretty, some are dull, some have weird names, and all are different colors....but they all exist very nicely in the same box.
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10-01-2008, 06:06 PM
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#73 |
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Crab mustard is good
Join Date: Feb 2008
Location: Wherever Uncle Sam sends me
Posts: 623
Credits: 1,879.8
Boat: Yet to be determined...
Home Port: Hoopers Island
Best Catch: 125# BFT
Occupation: hunt'n down bad guys
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I hope "NED" show's up to every one of Evan's doctor's visits from now on!!! Thanks for the update!!!
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"Tact is for People who aren't Witty enough to be Sarcastic" |
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10-01-2008, 11:55 PM
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#74 |
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I think Admin is going to let me have this space
Join Date: Jul 2005
Location: God's Country...Eastern Shore
Posts: 1,621
Credits: 1,359.2
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That picture is absolutely priceless. One family should not have to endure so much heartache.
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Capt. Anthony Thomas Skirtchaser Sportfishing |
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