Prayers for a little fisherman

[shoefish]

Praying for the best...

[Nimrod]

THURSDAY, OCTOBER 04, 2007 09:36 AM, CDT http://www.caringbridge.org/visit/evanlindberg

Evan received a CT scan on Tuesday at Children's Hospital in DC. The result was good. Nothing other than the hip spot is showing up. We spoke with the doctor from Children's this morning and Evan will start low dose chemo tomorrow. He will get it every day for 5 days as an outpatient. (That is 1 cycle.) The plan is that he will get 3 cycles with 3 week breaks in between. Then the spot will be treated with radiation.

He has never received low dose chemo before, only high dose, so we don't know how that will go. He will be scanned after the first round to make sure the disease doesn't progress.

In terms of the next step, we are hoping that Evan will be a candidate for the vaccine that Sloan is working on. They say that they are not too far away from it being available. Evan would have to have no evidence of disease and have a healthy immune system in order to qualify. God willing, all the pieces will fall into place.

Evan is feeling good, still wanting to spend as much time as possible at playgrounds. He is still going to preschool in the mornings. It's hard to imagine this beastly disease is trying to make a comeback, but hopefully we can kick it out quickly.

With hope,

Wendy

[HOLWACHAGOT]

EVAN is in my family's prayer's.

"God bless Evan and help him keep fighting hard and playing harder.
God bless the family to stay strong, courageous, and positive, while Evan is BEATING this diseaese"

Holwachagot

[Nimrod]

TUESDAY, OCTOBER 09, 2007 04:24 PM, CDT

Evan finished round 1 of low dose chemo today. He is doing ok, but doesn't have much of an appetite. As you know, Evan has been dealing with treatment that not a lot of kids have to experience. Well, as you can see from the picture above, now he is in a situation that is not so uncommon. Evan fell down on his elbow yesterday just before going to chemo. He had x-rays taken and today we found out it is broken. So now he will sport a custom black cast from just under his armpit down to his hand for three weeks. Unbelievable.

Tomorrow we head to Sloan to start radiation on the spot in his hip. He will continue to get radiation all next week as well. I thought he was going to get radiation after all of his chemo was complete, but the doctors thought getting it sooner than later would be better. One thing you can count on with treatment is change. Just when you think that you have a plan, it gets tweaked. Also, instead of 3 week breaks between chemos, the doctors think 2 week breaks might be better.

We remain hopeful that as a result of his treatment he will be back to N.E.D. again soon.

With hope,

Wendy

[gradywhite273]

God Bless, and keep fighting little man.

[shoefish]

God Bless, and keep fighting little man.

Ditto.

[Nimrod]

SUNDAY, OCTOBER 14, 2007 09:55 AM, CDT

We got back from NY on Friday night. The effects of chemo have caught up with Evan. He has been dealing with fatigue, diarrhea, nausea and loss of appetite. It breaks my heart to see him feeling so bad. The doctors said it should last about 2-3 days. Well, we're on day 4.

He started radiation on Thursday. We will go back to NY on Monday and continue with radiation all week and make every attempt to get rid of his bad symptoms from chemo. He has some medication, but it doesn't seem to have much of an effect. The radiation is not supposed to affect how he feels so I guess this is all from last week's chemo. I hope this is just the chemo's way of letting us know it is working.

He has been complaining about pain more often in his hip. We're nervous about that. We will talk to his doctor about it tomorrow.

We are hoping for a better week this week.

With hope,

Wendy

[Nimrod]

http://www.caringbridge.org/visit/evanlindberg

SUNDAY, OCTOBER 28, 2007 10:05 AM, CDT
Evan has completed 20 sessions of radiation on his hip. Thankfully, his diarrhea went away and the doctor gave us an antibiotic that is supposed to alleviate those symptoms after the next round of chemo. We will see. Evan was an absolute champ during radiation. The technicians really enjoyed working with him because Evan would keep them informed about firetrucks, garbage trucks and Spiderman each day, while staying so still that he was out of there about 10 minutes after arriving.

Over the course of the two and a half weeks that Evan was getting radiation, he consistently talked about his hip hurting, especially at night. We were concerned and talked to the doctor about it. He agreed that Evan should get another MIBG bone scan at the end of radiation just to be sure that nothing is spreading. So on Friday, Evan got his MIBG bone scan at 8:00 a.m. Then, we waiting for 5 hours for the results. We weren't alone. One family from Boston was waiting with us. Finally, we were called in to see the doctor. Thank goodness, no disease spread in Evan! The spot on his hip is still there, but according to the doctor that spot is dead due to the radiation. BIG DEEP BREATH. The family from Boston did not get such good news. They were there for routine scans and found out that their son Ryan had relapsed again. Please pray for Ryan.

This week Evan will have chemo everyday. It will be busy between Evan going to preschool everyday, then chemo. He will get a flu shot this week and get his cast off of his arm. And of course, it is halloween. He will be Spiderman and/or a firefighter. We are so happy he can enjoy halloween this year.

There is a new Band of Parents website I hope you check out. Band of Parents is a brand new non-profit foundation run by parents of kids with neuroblastoma who are working with Memorial Sloan-Kettering to fund and find the next big advancement in the fight to cure neuroblastoma. www.bandofparents.org.

With hope,

Wendy

[gradywhite273]

prayers sent , evan enjoy your halloween my little friend.

[WAHOONBOX]

PRAYERS SENT UP LIL MAN....I HOPE THE BOBO IS HEALING