Prayers for a little fisherman - Page 3

Nimrod · 02-01-2007, 04:11 PM

www.evansfund.org

Nimrod · 02-19-2007, 04:28 PM

Thought I would share this recent email between the wives. Just an update - not looking for anyone to have to cook.

Keep the prayers coming. Seems like a new hurdle every couple of days but Evan is an amazingly resilient little man........

Subject: Dinners for Wendy and Gavin
Date: Mon, 19 Feb 2007 19:03:18 +0000

Hi everyone,

I hope this email finds all of you well. For the last two months, the Germantwon Mom's Club has been providing meals for Wendy and Gavin. That ends on Wednesday. Until today, W&G were to return to Sloan on Mon. to begin Evan's antibody treatment, but that has been delayed until Evan is able to have an MRI on his head. One of the scans turned up something on his head so they need to investigate further just to be sure it's nothing.

I'm looking for volunteers for meals starting this Friday. I thought I'd do every other day through next week and hopefully by then they'll be heading back up to Sloan to begin his treatment. They are going to be out of town a lot over the next month for about a week at a time, so I don't want to schedule to far in advance. Please let me know if any of the following dates work for you.

Friday, Feb.23, Sun. Feb. 25, Tues., Feb. 27, Thurs., Mar. 1 and Sat. Mar. 3

Email me if you can do one of these days. I think we should still use disposable containers but hopefully they won't be heading back and forth to Children's anymore for over night stays so individual portions shouldn't be necessary.

Thanks so much!

Take Care,
Jane

www.evansfund.org

knot for shore · 02-19-2007, 04:49 PM

NIMROD,
I'm from Delaware, but I'm not sure if there is anything I can do around the dinners thing. Please let me know. My girlfriend and I love to cook!

Nimrod · 02-25-2007, 06:31 PM

Well after two more set backs that were delaying Evan's ability to begin the special antibody treatments at Sloan Kettering a bit of good news was received the other day........

From Jane:
Heard from Wendy on her way home. There's nothing there!!! Evan has the green light to start the anitbody treatment.

Yaaaaaaaaaaaaa----------hooooooooooooooooooooo!!!

rich · 02-25-2007, 06:37 PM

GOOOO Evan. Prayers sent for the little man. May God bless the little fellow and help him get better.

gottaflylee · 02-25-2007, 07:34 PM

This is wonderful news. I will keep him in my prayers. Hope all goes well with the new treament. Thanks so much for the update and be sure they know were are pulling for them.

SheLuvs2Fish · 02-25-2007, 09:30 PM

May God bless and keep him safe...

Nimrod · 03-08-2007, 11:59 PM

My wife was in contact with Evan's mother this evening and has this update. Evan and his family are warriors and are giving this awful disease a real fight. But it is unbelievably tough on them all.
------------------------------------------------------
Hi Everyone,

I called Wendy tonight on her cell to see how it was going up in NY. I am not sure if any of you have spoken with her, so I wanted to pass along on update. Wendy said this antibody therapy is really difficult. She was hoping it would be easier than the chemo, but it's tougher. Evan is in major pain each day for 10-12 minutes (crying/screaming), then once the treatment is done, he has been sleeping a majority of the day.

There have been side effects of the treatments, but each day it's something different. He got terrible hives all over one day, head aches, fever, etc. Wendy was explaining just how difficult this is on Evan and how horrible it is to watch as a parent. I can't even imagine.

Right now Evan has a fever,so they are in-patient at the hospital today/tonight. They were hoping to come home tomorrow or Sat., but it's looking like they may not get a chance. They have a meeting Monday that they didn't know about and Tuesday starts the radiation. So, if they can change the meeting, they'll try to come home, otherwise they'll just stay in NY. They'll be up there for a whole month. After this radiation, the do another round of the antibody therapy right away. Then after this month up there, they'll come home for three weeks and then start again.

She is still in fairly good spirits, but I can tell by the sound of her voice that this is really a tough week for all of them. If you get a chance, try to give her a call. Talk to you all soon. Amy

Nimrod · 05-09-2007, 01:32 AM

Evan's mother Wendy provided this update on their progress. Things are looking up in the battle against this terrible disease. I had the pleasure of spending some time with Evan the other day when he came over to play with our kids. It was so great to see him as a happy little boy again.

The road ahead is still long and filled with obsticles but the current situation is positive...................

"Evan has finished his third cycle of antibody therapy at Memorial Sloan-Kettering in New York. He has also completed 14 rounds of radiation. When we were there last, Evan had a couple of important tests which came up with no evidence of disease. That is the best possible news, of course! He has started taking Acutane; the first of 6 cycles. We are relieved and elated that he is able to swallow the pills! We are working on getting his central line removed and replaced with a mediport. This replacement surgery will be done at Children's Hospital in DC. There are a variety of advantages to this change, including lowering his risk of infection and freeing him to swim or do a variety of other things.

We head back to NY for cycle #4 of antibody therapy later in May, when he will also get a CT scan. After cycle 4, the breaks between treatments will be longer. The trips up to NY for antibody therapy will continue up to 2 years in all. Then, Evan will be monitored routinely every 3 months. Thanks to all who have inquired about Evan's condition."

Going Deep · 05-09-2007, 08:01 AM

Thanks for the update Capten..So glad to hear he is doing good..I will continue to have this little man and his family in my prayers

02-19-2007, 04:28 PM	#22
Nimrod AKA Capten Join Date: Aug 2006 Location: Germantown, MD Posts: 1,105 Credits: 6,275.8 Occupation: I sell stuff	February Update Thought I would share this recent email between the wives. Just an update - not looking for anyone to have to cook. Keep the prayers coming. Seems like a new hurdle every couple of days but Evan is an amazingly resilient little man........ Subject: Dinners for Wendy and Gavin Date: Mon, 19 Feb 2007 19:03:18 +0000 Hi everyone, I hope this email finds all of you well. For the last two months, the Germantwon Mom's Club has been providing meals for Wendy and Gavin. That ends on Wednesday. Until today, W&G were to return to Sloan on Mon. to begin Evan's antibody treatment, but that has been delayed until Evan is able to have an MRI on his head. One of the scans turned up something on his head so they need to investigate further just to be sure it's nothing. I'm looking for volunteers for meals starting this Friday. I thought I'd do every other day through next week and hopefully by then they'll be heading back up to Sloan to begin his treatment. They are going to be out of town a lot over the next month for about a week at a time, so I don't want to schedule to far in advance. Please let me know if any of the following dates work for you. Friday, Feb.23, Sun. Feb. 25, Tues., Feb. 27, Thurs., Mar. 1 and Sat. Mar. 3 Email me if you can do one of these days. I think we should still use disposable containers but hopefully they won't be heading back and forth to Children's anymore for over night stays so individual portions shouldn't be necessary. Thanks so much! Take Care, Jane www.evansfund.org Last edited by Nimrod; 02-19-2007 at 05:00 PM.

02-25-2007, 06:31 PM	#24
Nimrod AKA Capten Join Date: Aug 2006 Location: Germantown, MD Posts: 1,105 Credits: 6,275.8 Occupation: I sell stuff	MRI results are good!!! Well after two more set backs that were delaying Evan's ability to begin the special antibody treatments at Sloan Kettering a bit of good news was received the other day........ From Jane: Heard from Wendy on her way home. There's nothing there!!! Evan has the green light to start the anitbody treatment. Yaaaaaaaaaaaaa----------hooooooooooooooooooooo!!!

03-08-2007, 11:59 PM	#28
Nimrod AKA Capten Join Date: Aug 2006 Location: Germantown, MD Posts: 1,105 Credits: 6,275.8 Occupation: I sell stuff	March 8 Update - Keep Evan in your Prayers My wife was in contact with Evan's mother this evening and has this update. Evan and his family are warriors and are giving this awful disease a real fight. But it is unbelievably tough on them all. ------------------------------------------------------ Hi Everyone, I called Wendy tonight on her cell to see how it was going up in NY. I am not sure if any of you have spoken with her, so I wanted to pass along on update. Wendy said this antibody therapy is really difficult. She was hoping it would be easier than the chemo, but it's tougher. Evan is in major pain each day for 10-12 minutes (crying/screaming), then once the treatment is done, he has been sleeping a majority of the day. There have been side effects of the treatments, but each day it's something different. He got terrible hives all over one day, head aches, fever, etc. Wendy was explaining just how difficult this is on Evan and how horrible it is to watch as a parent. I can't even imagine. Right now Evan has a fever,so they are in-patient at the hospital today/tonight. They were hoping to come home tomorrow or Sat., but it's looking like they may not get a chance. They have a meeting Monday that they didn't know about and Tuesday starts the radiation. So, if they can change the meeting, they'll try to come home, otherwise they'll just stay in NY. They'll be up there for a whole month. After this radiation, the do another round of the antibody therapy right away. Then after this month up there, they'll come home for three weeks and then start again. She is still in fairly good spirits, but I can tell by the sound of her voice that this is really a tough week for all of them. If you get a chance, try to give her a call. Talk to you all soon. Amy

05-09-2007, 01:32 AM	#29
Nimrod AKA Capten Join Date: Aug 2006 Location: Germantown, MD Posts: 1,105 Credits: 6,275.8 Occupation: I sell stuff	5/9/07 Update - Prayers are working Evan's mother Wendy provided this update on their progress. Things are looking up in the battle against this terrible disease. I had the pleasure of spending some time with Evan the other day when he came over to play with our kids. It was so great to see him as a happy little boy again. The road ahead is still long and filled with obsticles but the current situation is positive................... "Evan has finished his third cycle of antibody therapy at Memorial Sloan-Kettering in New York. He has also completed 14 rounds of radiation. When we were there last, Evan had a couple of important tests which came up with no evidence of disease. That is the best possible news, of course! He has started taking Acutane; the first of 6 cycles. We are relieved and elated that he is able to swallow the pills! We are working on getting his central line removed and replaced with a mediport. This replacement surgery will be done at Children's Hospital in DC. There are a variety of advantages to this change, including lowering his risk of infection and freeing him to swim or do a variety of other things. We head back to NY for cycle #4 of antibody therapy later in May, when he will also get a CT scan. After cycle 4, the breaks between treatments will be longer. The trips up to NY for antibody therapy will continue up to 2 years in all. Then, Evan will be monitored routinely every 3 months. Thanks to all who have inquired about Evan's condition." Attached Thumbnails

Thread Tools
Show Printable Version Email this Page
Display Modes
Linear Mode Switch to Hybrid Mode Switch to Threaded Mode

02-19-2007, 04:49 PM	#23
knot for shore I think Admin is going to let me have this space Join Date: Aug 2006 Posts: 1,707 Credits: 3,082.0	NIMROD, I'm from Delaware, but I'm not sure if there is anything I can do around the dinners thing. Please let me know. My girlfriend and I love to cook!

02-25-2007, 06:37 PM	#25
rich Crab mustard is good Join Date: Sep 2006 Location: Eastern, NC Posts: 876 Credits: 5,705.7 Boat: Sea Time Home Port: Swan Quarter, NC Best Catch: my entire family Occupation: Self Employed	GOOOO Evan. Prayers sent for the little man. May God bless the little fellow and help him get better.

02-25-2007, 09:30 PM	#27
SheLuvs2Fish Sit down Shut up And fish Join Date: Jun 2006 Location: Inland, Looking East. Posts: 552 Credits: 1,445.5 Occupation: Work for myself...	May God bless and keep him safe...

05-09-2007, 08:01 AM	#30
Going Deep Stop staring at my Avatar. Join Date: Feb 2006 Posts: 397 Credits: 1,796.3 Home Port: Beaufort Inlet Occupation: Electrical Contractor	Thanks for the update Capten..So glad to hear he is doing good..I will continue to have this little man and his family in my prayers