OT:Anyone ever have lyme disease?

[LILY]

Hey everybody. I have had chronic leg pain for about 10 months now. Its really become quite persistent over the last 90 days. I have been to the doctors and have been tested for it 2 times, both came up negative. I have had MS tests, MRI, Cat Scans, you name it I have had every test. My daily schedule is now becoming a drag. I don't sleep well. I eat percocets like candy and they only work on taking the edge off. I just had more MRI's and just had a scan of all of my blood vessels. Every test has been negative. For those who know me. I have been an athelete all of my life and play golf indoor soccer, hunt, fish, crab, etc. I'm 40 years old and this has come out of nowhere. I'm currently seeing my 2nd nuerologist @ JOHN HOPKINS even they are mind baffled

Tonight I heard from my sister who knows of another test done in California that is able to better determine Lyme Disease. I'm going to research tomorrow.

With trophy season almost upon us, I hope I can manage the pain becasue I will go crazy if I can't do what I love to do more than anything and thats catch

Please if anyone has had it or has knowledge of this blood test in Calif. please let me know.

May I be in all of your prayers.-A SPORT FISHERMEN BROTHER IN PAIN


Thanks


Phil(lily)
UBBB
GUNPOWDER RIVER, MARYLAND

[Bking]

I have it and have had it for about a year now . I have simliar symptoms as you and trust me I know how frustrating it is. fortunately for me my test was positive the first time. The normal test is just not good enough to detect this disease sometimes . A negative test doesn't mean you do not have it. I have been treated with doxy since I was diagnosed and it is becoming very unsuccessful. I am building a resisitence to it and my symptoms keep coming back. My dr.s tell me I should try intervenous medication, however I am not sold on this method and thier are considerable risks with it. I am and have been very frustrated as I get different answers from every Dr. I talk to. My advice would be RESEARCH THE SHIT out of this disease on your own and try and come up with a treatment that suits your symptoms (if you do in fact have it) . I have heard about the test in cali but know nothing about it. Please don't make any quick descisions on treatment if you do in fact have it.
Have you been treated with oral doxycyclene?

[Talbot29]

I had it last fall. Got treated with doxy and that seems to have worked. My symptoms were more typical. Low grade fever, headaches, joint pain. They never actually could get a positive test on me since the symptoms appears within 2 weeks of the tick bite. I just told them to treat it and it seems to have works. My son had it a number of years ago. His symptoms were Bells Palsy - they hit him hard with intravenious antibiotics and he was better within a month.

Might you have gout? I've been battling that for several years now. You might want them to check your uric acid levels in you blood to rule that out (if you haven't already). Gout can be VERY painful!

[Sterling]

I'm no doctor but it sounds like you're talking to all the right people. A few other things come to mind but I have no idea if they are potentially related or not.

• Did they rule out RLS? Seems like I've heard it can have similar symptoms
• Have you flown lately? If so could it be something like deep vein thrombosis?
• Did they rule out Fibromyalgia? http://en.wikipedia.org/wiki/Fibromyalgia

Actually, beyond all the "normal" things it could be, it seems like I've heard of some things that are kind of unique to Fishermen and might not be something a doctor would look for. For example, I know a guy who cut himself on a barnacle and that caused some bizarre (curable) joint infection. Seems like Deep C's had more fishing infections than anyone I know. My point here is that if you haven't already, it would be good to let doctors know that you're in contact with fish and marine life. And of course mention any foreign lands you've visited in case it's something regional.

Hope you get better soon

House

[WAHOONBOX]

I AGREE WITH TALBOT HERE...COULD IT BE GOUT

HOLD OFF SHELLFISH...RED MEAT ......

AND GOFSHN JUST WENT THROUGH A SERIOUS BATTLE WITH ROCKY MT SPOTTED FEVER I THINK IT WAS ....

[randall r]

i had lyme . its so common here i had no problem getting diagnosed and treated early. my symptoms were stiff neck, waking in the night and shivering and sweating at the same time and of course feeling like sh!t. its probably to late now but a tell tale is a red bulls eye rash around the bite.

[marlineer]

Wow. I will say a prayer for You Brother. I have arthritis in My hands and fingers. At first I thought it was Lymes. I tested neg for Lymes and now as I look back I probably would rather deal with Lymes than this. I can manage but those damp cold days are killer. I hope evrything shakes out good for Ya'

[LuckyLady]

Both my mother and father had it and my brother has it pretty bad so we think. He is addicted to pain pills at the moment and they kill off endorphins which is a natural pain reliever from the brain and extended period of pills that natural effect goes away.

When I get normal pains for over use or abuse I go for a walk or a run no matter how it hurts afterwards I always feel better. Stay active!!

Its a tricky disease my mom my an activist with it once she learned more about, and had support groups monthly in the town. There is so many people that have it and do not realize it.

Lymes disease goes in and out of recession pretty quickly. It can be dormant for any period of time and come out 6 years later.

One of the ladies at the office has been misdiagnosed for 2 years with MS and just recently was she told that she actually has lesions on here brain causing all the pain and difficulty walking which has been contributed from the lesions

I have some phone #s to people that have received treatments and its helped dramatically, and they are willing to help people find the correct treatment.

There are a few select doctors that really know how to treat the disease and not to make an insult to anyone most dr's do not understand it.

I will post up what information I can find or any phone #'s that might help

I know that there is a Dr here in Jackson that is a victim of the disease herself and understands it very well.

[Bking]

[QUOTE=LuckyLady;316206

There are a few select doctors that really know how to treat the disease and not to make an insult to anyone most dr's do not understand it.



So true Mary!

[Bert Rodgers]

Be careful, lymes hides and comes back with avengence so don't take a negative test at face value. Get retested a month later to be sure.

Bert